What is the Aiden McVicker Charitable Fund?

   

The Aiden McVicker Charitable Fund is a local, grassroots charity whose purpose is to assist children with special needs and their families. The Fund was born out of respect for Aiden McVicker, the 18 year old son of Jamey and Amy McVicker. He resides in their Cameron home with two siblings, Avery 15, and Addison 12. Aiden’s extraordinary spirit and unmatched love of life is a true miracle to witness.  

Aiden was born on May 4th, 2001 with bilateral anophthalmia. This means that he was born without eyes or any eye structure (optic chiasm, nerve, etc.). As a result, Aiden does not possess vision or light perception. Aiden also must overcome the challenges that neuromuscular scoliosis of the spine brings. Thus, he has spinal rod implants to correct this issue. With all the obstacles life has thrown at him, he continues to smile and bring so much joy to the lives that he touches.

To date, thanks to our donors, supporters and volunteers, the Charitable Fund has donated more than $125,000 to local area children and students. We are so happy and proud of the following:

· $45,000+ in scholarships to graduating students continuing their education in a field that will benefit these children.

· $80,000 in grants to children, families and organizations such as UCP and CCVI

Hearing aids, residential therapy and care, van modification for a wheelchair, parental attendance to an Autism Conference, an adaptive jogger, an inclusive and wheelchair accessible playground and a custom power chair are a few of the grants that have been awarded since our inception.  A second goal of the charity is to increase the professional workforce in the region that would play a major role in the life of these children. Finally, we aim to align ourselves with other organizations that share similar fundamental goals and hope to reduce overlap and share in resources with these organizations.

Aiden is the most fun-loving, trusting and hard-working kid one could meet. The moment you hold him, see him smile or hear his giggle, you realize that he gives so much of himself to you. He cannot verbally express his strong spirit, but he knows how to love even though he has had to fight for every second to do it! Aces Fore Aiden was established to honor him and his spirit. It is the wish of his parents that he understands love, touches as many peoples’ lives as possible and that his All-American spirit be witnessed and duplicated.

Proceeds from the tournament benefit The Aiden McVicker Charitable Fund in an effort to assist families in the area needing assistance for educational classes/conferences, adaptive devices, etc. for their child’s special needs.  Other donations to include but not limited to: Assistance for camps, competitions, other sports/cultural booster activities, scholarships, and to specialized schools & organizations, such as CCVI of KC, and UCP of St. Joseph, etc. 

Our organization could not exist without the sponsors, volunteers and participants who support and believe in Aiden and the mission of the Aiden McVicker Charitable Fund. We are truly blessed by all of you and truly appreciate your support. 

Who is Aiden McVicker?

    Aiden McVicker is the 18 year old son of Jamey and Amy McVicker. He resides in their Cameron home with two siblings, Avery 15, and Addison 12. Aiden has an extraordinary spirit and an unmatched love of life that the world needs to know.  

Aiden was born on May 4th, 2001 with bilateral anophthalmia. This means that he was born without eyes or any eye structure (optic chiasm, nerve, etc.). As a result, Aiden does not possess vision or light perception. His treatment, as of now, concentrates on protecting the ocular cavity and associated sinuses by preventing the frontal bone from collapsing in on the voided area. This treatment has entailed four surgeries thus far. The most recent involved using “hydrogel expanders”, a cutting edge prosthesis for the United States. These implants are inserted and sutured into the orbital void to provide the pressure necessary to prevent collapse. 

Aiden’s spine developed neuromuscular scoliosis at the age of 4. He endured a corrective brace for 1 year with no improvement. In June of 2006, it was deemed necessary that surgical intervention was needed before the curve progressed more, or Aiden’s quality of life would be diminished and drastically reduced. While undergoing testing for the corrective spine surgery, it was found that his lower spinal cord would need untethering to allow the spinal cord to be extended. This meant another spine surgery in October 2006 to prepare for “the big one.”  

In January of 2007, this 6 year old boy then underwent a 6 hour “growth rod” spine surgery, comprised of 2 rods inserted on each side of the spine. They are then anchored in the hips and upper vertebrae by screws. He spent 5 days in ICU on a ventilator and other support monitors. On the 6thday he was released to a regular room and was home the next day. Biannual surgeries are required as Aiden grows. During these procedures, an adjustable “connector” is accessed to lengthen, compensating for growth. Between 11-13 years of age, one final surgery to fuse his spine and stop the growing process will be necessary.

Aiden’s mom, Amy, is employed as an accounts payable/tax clerk with the City of Cameron, MO. She has been there for 15 years. Dad, Jamey, has been a Firefighter for the City of St. Joseph, MO for 20 years. Aiden is the most fun-loving, trusting and hard-working kid one could meet. The moment you hold him, see him smile or hear his giggle, you realize that he gives so much of himself to you. He cannot verbally express his strong spirit, but he knows how to love even though he has had to fight for every second to do it! Aces Fore Aiden was established to honor him and his spirit. It is the wish of his parents that he may touch as many people possible and that his All-American spirit be embodied in us all.

Proceeds from the tournament benefit The Aiden McVicker Charitable Fund, which assists specialized schools & organizations, such as CCVI of KC, and UCP of St. Joseph, etc. Monies will also be used to assist families in the area needing assistance for educational classes/conferences, adaptive devices, etc. for their child’s special needs.  Other donations to include but not limited to: Assistance for camps, competitions, other sports/cultural booster activities, and scholarships.